Are you a child, teenager, or young adult who has had cancer? Are you a parent or a carer for a child who is receiving – or has received – treatment? Are you a clinician who has developed good practice for young cancer patients?
Last year, with the help of CLIC Sargent and Teenage Cancer Trust I set up the APPG because young people told me that they wanted their voices heard in Parliament. They wanted to speak up about how their experiences could be improved, and they wanted politicians and experts to hear about the consequences of treatment for their education, friendships, and their future. Improvements have been made in cancer services across the UK, but progress still needs to be made in key areas of experience for children, teenagers and young adults, including earlier diagnosis, access to age-appropriate services and post-treatment support.
To help do that, the APPG is conducting an inquiry into young people’s patient experiences, and I spoke about the inquiry in a debate on the government’s Cancer Strategy last week. Full details are on the APPG website. And you can follow updates on the work of the APPG on Twitter (@APPGYoungcancer)
What parts of your patient experience worked well? What would have made the experience easier? How were you treated by your doctors, nurses and medical staff? What support would you want in place to help with the long term health impacts of treatment? And what question would you want to ask the government if you had the chance?
Tell us your story and together we can make the experience of cancer treatment better for all young people. Thank you for taking the time to tell us about your experiences, and please the survey with anyone you know who has a story that they can contribute.